RFK Jr. set to launch disease registry tracking autistic people

Summary

RFK Jr. is using private medical records to create a registry of people with autism in the United States.

The National Institutes of Health is helping to collect private medical records from government and commercial databases, including “prescription records from pharmacies, lab testing, and genomics records from the Department of Veterans Affairs and Indian Health Service, private insurance claims, and data from smartwatches and fitness trackers.”

Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals. He has called autism “preventable” and claimed “he can find a cure for the condition by September.”

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conditional_soup 10 points a year ago

I'm going to try and play devil's advocate here, only because my experience in healthcare suggests to me that this is being sensationalized and there's already enough legitimately awful shit happening without sensationalizing stuff. Now, do want you want, but if you'll check my history, you'll clearly see that I'm not fan of this administration. This doesn't sound all that different in principle from NEMSIS, which is the US government's clearing house for EMS patient care reports that it uses for research purposes. I don't trust RFK, I think he's going to do something monumentally stupid and just go fishing for a way to blame vaccines, but I don't think that this is actually a kill list. Besides, what would be the point of them building a kill list?

Between Palantir building a target list and the NSA mass surveillance program, it would be a huge duplicated effort.

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polyploy 21 points a year ago

It doesn't have to be a kill list, that's what you're not understanding. Medicalizing dissent, creating registries of potential scapegoats and vulnerable people to target or practice on, that's the purpose. They create an outsider group to stigmatize and then broaden the definition as necessary.

You need to look at this step within the totality of the conduct of the regime so far. They are already rolling back child labour laws and openly talking about the need for a baby boom. Children are one of the most vulnerable groups in society, especially in conjunction with other factors like a migrant background or being in foster care. How many kids are in precarious situations with either absent or completely disempowered parents?

They're already putting unattended children in front of immigration judges without legal representation, if the state simply kidnaps and disappears the children of people it's trying to deport without due process, what's to stop them? What do you think these ghouls might want to do with lists of kids?

What you need to recognize is that this is the sort of registry that would be directly accessible by those surveillance initiatives you mentioned. It's not duplicated effort, it's part of the same effort, this is just one of the ways they are trying to define their enemies and undesirables.

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conditional_soup 10 points a year ago

Tbh, there's so much damage that's been done, that's being done, and that's going to be done, I'm trying to aggressively filter anything that isn't immediately tangible (the death of due process is immediately tangible, for example) so I don't get totally overwhelmed. I know that there's a strategy Bannon taught them, called "flood the zone with bullshit" that relies on producing so much fear, uncertainty, and doubt that it overwhelms and paralyzes the opposition. That's what I'm trying to guard against.

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polyploy 13 points a year ago

That's fair and I understand the impulse. The point of flooding the zone is partially to create panic and confusion, but it's also a way to rapidly scatter a bunch of possible seeds of division or control at once, then focus on tending whatever works best, whatever has the least opposition afterwards.

There's absolutely no situation in which a fascist regime making registries of "diseased" children is unworthy of alarm though.

I point out the vulnerability of kids because fascists always start with their easiest targets. It allows them to normalize, practice, and develop the systems they are building while also instilling fear and eroding opposition. That's why we have to take this shit seriously from the start, the longer anyone waits the fewer there are around to fight back.

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