Lyrosel 3 points 3 years ago

I am not the target audience, as I am a level 1. I was mostly a lurker in r/SpicyAutism, as I was curious about how autism affected higher support needs people. I honestly plan to use this community for similar purposes (as a medium for learning authentic first-hand experiences).

Something I never really saw on SpicyAutism, however, were links to helpful posts. There is a lot of misinformation about autism online, and having an easily accessible repository of anecdotes from higher support needs autistics would help combat that. It could also avoid infighting concerning terminology (which I'd observed as SpicyAutism started to grow).

I also noticed that a lot of people in SpicyAutism seemed to be slightly confused about the level system or support needs system—perhaps there could be an article on that as well.

save

path: 0 609060, hotness: undefined, score: 3, children: 12

Pieplup 4 points 3 years ago

the rpobelm with htis is as a high support needs ausitic person it's very difficult to put things like this in motion cause it takes oto much energy. we might be abl to maek a post with defintions and pin it. We cana lso take a harder stance on misinformaiton than spciy autsim did in which tehy didnt' take too much of a stance on it from wat i remember. Also teh spicy autism mod team falsely banned me adn accused me of very bad things which i dind't do. We should work together to make something better but they insist on burning the bridge.

save

path: 0 609060 609181, hotness: undefined, score: 4, children: 7

Lyrosel 1 point 3 years ago

I have seen the blog post that you linked in the other comment!

we might be abl to maek a post with defintions and pin it.

This was closer to what I meant, though. There was a lot of discourse surrounding what exactly terms like "nonspeaking" meant.

As for the mod team, it seems like it's only you so far—perhaps bringing in another higher support needs autistic or a parent who takes care of a higher support needs autistic would help with that (similar to what SpicyAutism did). I don't know the full story behind the SpicyAutism banning, however, so I can't say much about that.

save

path: 0 609060 609181 609300, hotness: undefined, score: 1, children: 6

Pieplup 2 points 3 years ago

I think part of the problem si most of hte audience in spicy autism was lurkers and i'mb ecoming frustrated cause no one is posting but it's rather normal as like 90% of the peopel on spicy autims either rarely post or are lurkers

save

path: 0 609060 609271, hotness: undefined, score: 2, children: 2

SuddenDownpour 2 points 3 years ago

Taking off a completely new subreddit/channel is pretty difficult and it often fails. Usually, the creator of the place has to keep posting content for weeks or months to even reassure others that there's a chance for the place to remain active, and that still doesn't guarantee anything. Unless the place has a name that people will naturally seek (for instance: "Autism", "ADHD", "Neurodivergence"), you have to put in effort to convince people to give it a chance.

Regardless, good luck, and have a good day.

save

path: 0 609060 609271 653346, hotness: undefined, score: 2, children: 1

Pieplup 2 points 3 years ago

https://highneedsadvocacy.blogspot.com/...

I think part of the problem wtih spicy autism ist hey moderation team isn't that good an d they often let people get away with spreading msiifnromation and being ableist.

save

path: 0 609060 609108, hotness: undefined, score: 2, children: 0