Menieres is a disorder of the inner ear with the most pronounced symptoms being vertigo and hearing loss. I'd be happy with any mildly related communities also such as for non-visible disabilities, permanent progressive illnesses, hard of hearing, deaf, etc. I haven't found anything through searches yet and I'm not experienced enough to create or moderate my own community. Thanks!
Any community related to Menieres, Vertigo, Hearing Loss, etc?
a year ago by thicksliceham to c/lemmy411
thicksliceham 1 point a year ago
It most certainly does suck. It's be great to have a place where we can vent, talk about what triggers attacks and what helps prevent/soothe attacks. There was a sizeable community on Reddit, and I miss that resource.
If you don't mind me asking, how long have you had symptoms/been diagnosed? It's been an eight year struggle for me, but only recently diagnosed after moving states and seeing a new ENT.
Mnem667 1 point a year ago
it's been roughly 7 years on the diagnosis, maybe 8 or 9 for the symptoms. I had a pretty good ENT.
I didn't know there was a subreddit for it, that may have helped me lol
I've been mostly managing with magnesium and hydration, but for some reason this last couple of weeks, it's really kicked in hard
thicksliceham 1 point a year ago
Hydration is super underrated!
Sorry to hear you're having it tough lately. I have been too, and that's why I was trying to find the right group here to chat it out lol. I'm honestly surprised there's no community that's remotely relatable for what we're going through.
Mnem667 1 point a year ago
Coincidentally, finally released today after about 3 weeks of variable plugged. Yay for vertigo! Wasn't too bad today, because it released slowly. Hope yours works out soon.
FundMECFSResearch 1 point a year ago
I made !chronicillness@lemmy.world which is decently active, but a bit more general.
I’m functionally deaf due to a chronic illness, so I can relate a bit, sorry to hear you have Menieres.
thicksliceham 2 points a year ago
Thank you! Subscribed!!
lemmy411
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go to feed...
lemmy411
@lemmy.ca
2186
124
8
This is where you ask about the Threadiverse community you're looking for but not finding.
See the stickied post for tools and other communities that may help you find what you're looking for or discover something new.
When sharing community links, please use the universal format:
Rules
- Don't be a jerk or be deliberately unhelpful
- Please post a clear easy to understand request for a community (or instance!)
- Pls no NSFW requests - if you want to create /c/NSFW411 go ahead.
- No posting of personal information
- Please refrain from suggesting users should use search engines or directories.
- No joke, troll or misleading suggestions or requests
- No spam
go to feed...
If you find anything, lemme know. Ménière's disease sucks, and my left ear is pressurized currently.
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