cross-posted from: https://aussie.zone/post/34581678
Medically concerning but also nothing
Zarobi 4 points 3 months ago
Yeah that's a big frustration… I'm on disability, but people sometimes say, hey look you're getting better! Go get a job! But what they don't see is I can only do 3 small or 1 medium thing per day. My definition of small and medium probably being very conservative: a doctor's appointment is extra large, a 15 minute walk is medium, eating breakfast is small. And I need alternating days off where I can't do literally anything. And I'll randomly get put down and can't get out of bed for a month… No job would take me lol
But this hospital visit was mostly about random severe hyper-POTS flares. My blood pressure keeps hitting 200/170 from adrenaline dumps. Hopefully someone gives me another magic pill soon before I pop like a leaky balloon lol, the hospital just sent me home
chronicillness
@lemmy.world
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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chronicillness
@lemmy.world
645
191
138
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
go to feed...
Can’t speak to the others but ME/CFS is a special type of hell when you get a small remission period so
Nobody believes you,
You’re expected to push past your limit and
It’s extra awful when it comes roaring back like a freight train to the face from stress or a virus or just because screw-you-that’s-why
I’m sorry you’re dealing with this OP hopefully you catch a break
save