Fucking hell, I told a doctor that the blood test will very likely not show anything, but they wanted to do one anyways. When the results came back, they told me I was healthy. Thanks, I'll relay that info right to my fucking body, so it can stop producing pain.
misk 21 points 2 years ago
When I got sick it took me a month to realise I might have had what my grandma had. That got scary for a moment because her tests were always normal and my whole family, myself included, thought she was a druggie. I got dead set on getting to the bottom of it and therefore got diagnosed in likely a record time despite being seronegative.
If you want to put a cherry on top then you can add referral to a psychologist in the last panel XD
benignintervention 9 points 2 years ago
They didn't even run a test and told me to drink Gatorade
FundMECFSResearch 3 points 2 years ago
I went through diagnoses of burnout, anxiety, FND, health anxiety, depression, before I finally met a doctor who did the right tests and diagnosed my illness.
The medical system has an obsession with psychologising illnesses they can’t explain. it’s scary.
The paradigm is, meke them do therapy and exercise, and everything will magically get better. Which, well when you have an underlying undiagnosed medical condition, just isn’t the case.
chunes 2 points a year ago
This.
I was referred to physical therapy twice. I was told, "No pain, no gain," and made to feel like I'm just some piece of shit who doesn't want to put in the work.
Surprise! It was ALS. (Which didn't get diagnosed for several more years...)
Shoe 21 points 2 years ago
It took nearly 12 months, an emergency visit, and being lucky enough to get a Dr who listened before "the tests look normal, idk, do some stretches?" became "oh no, your arm's blood supply is compromised, we have to do surgery."
So glad I didn't listen to the other Drs, or I'd never have found I have the lucky combination of arterial and venous thoracic outlet syndrome. On the downside, they're going to cut my rib out, but it definitely taught me to trust my body when something seems wrong.
Atelopus-zeteki 19 points 2 years ago
Rule Number 1. Treat the patient, not the lab results.
goferking0 14 points 2 years ago
At least insurance didn't block the test?... Unless had to pay out of pocket :(
unexposedhazard 12 points 2 years ago
Maybe get a different kind of "lab". I know not necessarily helpful with the illness but maybe psychologically.
Atelopus-zeteki 3 points 2 years ago
LoL
thezeesystem 10 points 2 years ago
My problem isn't with the lab results, it's insurance unable to do anything productive unless you go through there steps to "make sure" your not faking it. I have chronic pain and first step is physical therapy which makes it worse so I Physically can't do it. But in order to get "ahead" on figuring it out I have to do it. But it's ok my lab work is fine though.
shikitohno 2 points 2 years ago
I had a different, fun experience. My lab work was actually what got me diagnosed, but to make sure I'm taking the right dose and my medication is being effective, I need to get labs done about every 3 months. Insurance decided that nobody could possibly need lab work done more than 3 times a year, so I got a nice $2,000 surprise bill in the mail for the last labs of the year.
RebekahWSD 5 points 2 years ago
"Your spleen is enlarged but blood work is fine so guess it's okay"
Uhhhhhhhhhhh
RebekahWSD 3 points 2 years ago
Hopefully it doesn't do more spleen things!
Same with this dental abscess, gotta hope it holds together until September 26th! Soonest appointment!
chronicillness
@lemmy.world
643
191
137
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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chronicillness
@lemmy.world
643
191
137
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
go to feed...
“Great news, your blood test results are normal so we won’t be giving you any of the support you need!”
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